Wednesday, February 4, 2009

Sofia Bettina Carmel Metran our Special Child

Sofia is a very special child.
She was born with a small heart and small brain and was diagnosed with Autism.
When my sister Almen gave birth to her, she was so tiny. She had to stay in the incubator for 1 month to increase her body weight. The doctor even told us that there was little chance of survival since she is underdeveloped.

Until now we still dont know exactly why, but the brain develops differently in Sofia. Finding the cause (or causes) of her disability is one of the most challenging for both my mommy (her grandma) and me because she was well taken cared when she was still in her mommy's womb even after birth.

The absence of a clear understanding about what caused Sofia's autism makes finding effective therapies very difficult. We tried PT services but it was so expensive that we try to learn the craft ourselves and take turn on giving her massages. We looked into the internet and try to search for its causes and we learned that Autism is inherited or can be passed through the genes but we dont have any relative with autism???

It seems that it is not clear why a genetic predisposition affects some family members and not others.

What we do now is we try our best to give Sofia "Emotional Quotient" since "I.Q" seems so difficult to achieve. She still stand 42 inches tall all talks like a 2 year old even if she's already 5 years old. She can only eat in small amounts and drinks water from the spoon. What's very amazing about this little angel is that she is very prayerful. she prays a lot and whenever she see's a picture of the blessed Mother Mary she would call her "Mama Mi!" and talks to her like the picture is talking back to her. Whenever she goes to prayer she would get a blankie and cover her head like what the Blessed Mother does and tells her "Bless Daddie! Bless Mommie!...san ka na! hanap mo ako???? Dito lang Sofi hintay kay Daddddie!".

When Sofia was diagnosed with the dreaded Kawasaki Disease, I felt the world fell down on me. But God was good. He touched people to give help for Sofia. The BCBP family, the Handmaids of the Lord my father inlaw Teddy Escosora, the Hon. Mayor Duterte and the very understanding I.C.P. management who helped us look for the intravenous medicines that costs P9,000 per vial were very kind to extend help in giving 2nd life to Sofia.

Haaay! sometimes this little angel touches me a lot! Her prayerful nature reminds me that we should always fulfill our religious obligation and that God is always there for us no matter what.
God Moves in mysterious ways !

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